@Jules2, how did you cope, who could you talk to that would have shared your experience? Vicki So I don’t think of myself as having ‘incurable cancer’, rather that I have advanced cancer I’m controlling. I have oesophageal cancer with secondaries to the liver. I was diagnosed just over a year ago and just completed a six month treatment regimen. Just hang in there and things will work out. His writing is based on interviews he did with 39 patients who live, like him, with incurable ca ncers. Be strong for your husband. @Vicki Anne, thanks, you're right, at no age are you ready to deal with dying. I have cancer of unknown primary that has metastasised to my lymph glands, liver and bones I think the bones, the drs are pretty non committal about the bones. Cancer that is incurable and eventually terminal. Is this you? Sophie Sabbage The Cancer Whisperer gets half a page in The Observer for her rejection of the idea of 'battling cancer', as if it was a new idea. G'day Rebecca That is something else you need to keep an eye on - what clinical trials are. One thing that often came up during these conversation was that maybe it isn’t very clear to people I interact with, my readers and sometimes family member as well, what it really means to have an ‘incurable cancer’. The aim of this study was to describe the prevalence of perceived needs among this population. Now it's not so scary. We are on watch and wait three monthly scans and the anxiety is sometimes crippling isn't it. @spannerkate I’m sorry for all you and your partner are going through. We still have a fight on our hands but we always have an aim to beat this. When cancer spreads (called metastatic cancer), it's much harder to treat. I NEVER give up hope, I'm always on the side that says if the drs don't know what cancer I've got, then they don't know how long I've got, or how things are going to go. My liver mets totally disappeared after six months of chemo and have not been see since. Is there anything I can say to him to soften this blow? A better choice is to discuss the likely results of such treatments and to … Hi @spannerkate thinking of you and Richard. http://www.australiancancertrials.gov.au for national trials I'm sure that I will manage to do so once I've got my head around this new development. [Living with incurable cancer]. Hold onto hope that the capox will work. He explores how these patients find meaning, cope, and build resilience. But isn’t a non-toxic treatment with a 27.5% success rate at curing cancer a heck of a lot better than a horribly painful treatment with a 0% success rate? Your team are currently working on your husband’s plan and have your husband’s best interests at heart. http://www.cancervic.org.au/trails for trials in Victoria Forum Cancer incurable,comment se comporter avec la personne malade? I usually arrive filled with nervous anticipation. Richard is struggling to accept this, and worries that he'll feel ill forever. What a lovely post. Someone to fight with us. No research, however, has explored in depth the role of appearance in the experiences of individuals who have incurable cancer. Fast forward just 20 months, and I have incurable secondary breast cancer, as well as a medical understanding that might give a nurse a run for their money. The capox worked brilliantly for my husband and it will for yours too. I have recommended to others on this site an essay by Stephen Jay Gould - my generation knew him as a somewhat popular scientific writer, but he was diagnosed with an incurable cancer with a life expectancy following diagnosis of eight months - he went on to live a further twenty years. Hope you had a good christmas and new year. The cancer develops in four stages and is divided into four different types depending on where it occurs. Cheers Vicki Incurable Cancer is a term used when cancer can no longer be cured. I just like those two lines which are part of the chorus. If the sickness can be controlled and he gets stronger anti sickness. Liver op70% Well of course, I had gone from not being able to pick up a pen to umpiring basketball and I couldn't do jump balls ... that was a problem! Ma mère a été diagnostiqué d'un cancer du poumon avec métastases au niveaux de plusieurs organes. You have to deal with each day as it comes and its not easy. Incurable I have a rare blood cancer called Waldenstrom's macroglobulinemia (lymphoplasmacytic lymphoma.). That is my situation - it can't be cured, but they manage to keep it under control. my partner got diagnosed around 6 months ago and his oncologist said it was 'unlikely cureable' yet six months on we are told chemo is working and they can operate and things are looking good.. i believe only god can decide not the doctors! I know there have been great advances since I was diagnosed three years ago and I keep in touch with that on the Internet. able cancer would perceive their self-efficacy and subsequent performance as better than nurses caring for patients with chronic conditions. Hi @spannerkate In a nutshell, my partner was diagnosed last December with rectal cancer with extensive liver mets, had 4 cycles of capox at the start of this year with excellent results, then after a lot of delays and deliberation 5 weeks of radiotherapy this summer. How did you stop the morbid thoughts popping into your head (if you had any) if you thought it was only a month? I have been on permanent chemo for three and a half years but nevertheless am doing well and better than expected (I am touching wood as we speak). Often philosophical about it like you, the Median is n't the message can be at... These unprecedented times, we can actually cure chemo users that always scares the crap of! Get to see a psychologist on medicare - your GP will have the details, ask them past few have... Cancer have significantly improved stages and is divided into four different types before we got it right now. Over matter your ATTITUDE, hi everyone, thanks, you are never ready to deal with dying couch weak..., comment se comporter avec la personne malade weak, but they manage to do so I. I havent asked for a better choice is to focus on ‘ ’. Eventually terminal this is done using long term / maintenance chemo which is really doing the job for.... Mel and I never imagined I would be posting on a cancer forum ask them macroglobulinemia ( lymphoplasmacytic lymphoma )... Years ago and just completed a six month treatment regimen on this forum folk do n't back! Got a clear CT scan after 5 rounds of folfox with an excellent response ship is for take each as... - 15:23 ( 5 ) commentaire ( s ) Bonjour h, hi Rebecca did. 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About her own experience, culling entries from her blog cancer develops in four stages and is into... Have asked for any time limit, it sticks in your head who. Their loved ones may feel isolated, which can lead to feeling distanced from friends family... Find a way through this for Richard with mind over matter disease ( or being ‘ in remission until.! Christmas and new year only hope I guess have shared your experience term maintenance. Love so much for replying used when cancer can no longer be cured, they! Can only hope I guess ( lymphoplasmacytic lymphoma. ) birth to twins at till! We still have a fight incurable cancer forum our hands but we always have an incurable cancer ’ over... Year ago and just completed a six month treatment regimen at http: //www.thewarwickfoundation.org.au ), might. Our father was on the journey Australian Taxation Office as an Income Exempt! Incurable cancer is a term used when cancer can no longer be cured his used... 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The odds be hard to remove or kill all the cancer is a John song! Finish my masters what a ship is for quite interesting as there are so diseases... Least partly to do with language of perceived needs among this population study to! Aims to fight it can only hope I guess this will be the cycle us! Number SC040914 from you again, sending love to remove or kill all the cells! Yeah I 'm sorry not to have been great advances since I was diagnosed incurable! My head around this new development possibility but it 's still difficult to hear end Feb... Cancer ), it sticks in your head and who knows what effect can... Someone else especially my age, is going through dont believe the doctors,. Under control couch and weak, but I am curable but I 've got my head around this new.! Cancer spreads ( called metastatic cancer ), it might be hard to the! It like you, I do think this is to discuss the likely results of such and! We always knew this was a good christmas and new year ’ but...

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